Food allergy affects over 2.6 million Canadians, including almost 500,000 children. Researchers are committed to better understanding how to prevent, diagnose, treat, and eventually, cure this medical condition. Learn how you can participate in research studies.
Participate in research
Survey: Food allergy survey for dietitians
If you are dietitian who works with pediatric patients, you are invited to participate in a study looking at the current knowledge, capacity and practice of dietitians in Canada as it relates to food allergy. The results of the study will help the research team understand which areas of food allergy need further dissemination and knowledge translation to dietitians.
Your participation is important to providing the researchers with meaningful results. Please take the time to complete the survey.
For the details about the study and how to participate, please see the note below from the research team.
From the research team:
The research team, led by Dr. Edmond Chan, Dr. Lianne Soller and Kirstin Wingate of the Division of Allergy and Immunology at BC Children’s Hospital, is looking at current knowledge and capacity of dietitians in Canada for working with pediatric patients with food allergy.
How to participate
Participation will involve completing a secure, online questionnaire related to your knowledge of current recommendations regarding food allergy, perceived capability of providing safe and accurate information regarding food allergy to patients, as well as basic demographic questions.
The online survey should take around 15-20 minutes to complete.
Participants will have the option to enter a draw to win a $200 gift card to Amazon.
Eligibility
To be eligible to participate, you must be a Registered Dietitian in one of the Canadian regulatory bodies.
Confidentiality
Participation in this study is entirely voluntary. You may refuse to participate or you may discontinue your participation at any time without explanation. Your survey answers will not be linked to your name or identifying information. All information obtained during this study will be kept strictly confidential. The research data will be available only to the research team. This study has been reviewed by the
University of British Columbia – Children’s & Women’s Research Ethics Board.
Second Phase
This survey is the second iteration of a survey that was distributed in British Columbia in May 2019. If you already completed the survey at the time, please do not complete it again now, it is essentially the same survey.
Survey link
To participate in this study, please click on this link to start the survey:
https://rc.bcchr.ca/redcap/surveys/?s=NPH443JCPM
The survey will be open until November 22, 2019.
Questions
If you have any questions about this study, please contact Kirstin Wingate, the study coordinator, at allergyresearch@bcchr.ca.
Survey: A study that will help to measure quality of life
Please note, researchers are seeking teens to participate in the quality of life study. If you have a teen or know of teens impacted by food allergy, please let them know about this study.
Participate in a new study that aims to understand your health preferences and how food allergy affects your quality of life. This study is a collaborative initiative with CHU Sainte-Justine’s in Montreal and Food Allergy Canada, and is sponsored by a Canadian Allergy, Asthma and Immunology Foundation research grant. It is led by Dr. Philippe Bégin, allergist at CHU Sainte-Justine and member of our Healthcare Advisory Board.
If you have a food allergy or are a parent of a child with food allergy, you’re invited to participate in this important study. You will be asked to complete an online survey, available in English and French, that should take approximately 40 minutes to complete. This survey is lengthy because it includes detailed questions on your general health preferences, which are needed to establish quality of life indicators for the food allergy population. These measurements have never been calculated before.
Your participation in the study is vital to providing the researchers, and patient organizations like ours, with insightful results on how the quality of your life can be greatly improved.
These results will help to inform our advocacy efforts with government and other key stakeholders to drive positive change, such as:
- Increase access to drug coverage (e.g., ensuring everyone has access to epinephrine)
- Improve clinical resources (e.g., increased access to allergists, proper diagnosis, treatments, and more)
- Secure public investments (e.g., additional government funding for this medical condition)
Participate now
Your participation is crucial to providing the researchers with meaningful results. Please take the time to complete the survey. Note: the survey will not work on mobile phones.
Contact details
For any questions or comments on this research, please contact the research team at 514-345-4931, extension 4201 or at info.allergie.hsj@ssss.gouv.qc.ca. For any questions regarding your rights as a participant in this research project or if you have any complaints or general comments, please contact the CHU Sainte-Justine ombudsman at 514-345-4749.
Participate in a study that looks at burden of food allergy: NUANCES
This study is looking at the multidimensional burden of food allergy, meaning the impacts it has on quality of life, social behaviour, and its economic and related burdens for families and adults managing multiple food allergies. Each survey takes 15-20 minutes to complete and responses will be anonymous.
The study has been developed by food allergy researchers in Manitoba and Ontario and approved by the University of Manitoba Health Research Ethics Board. The researchers are interested in gaining a better understanding of how families and adults view the burden of food allergy.
Your participation in this study is important for providing the researchers, and patient organizations like ours, with insights that can be shared with government and other key stakeholders to inform positive changes for Canadians with food allergy.
How to participate:
Families of children with multiple food allergies: To be eligible, your family must have 1 child or more (< 18 years of age) with multiple food allergies.
You are not eligible to participate if:
- Your child has only 1 food allergy (or food group, such as tree nuts)
- Your child with multiple food allergies has other health conditions that impact diet (i.e. diabetes, eating disorders)
The survey closes on December 8, 2019.
Adults with multiple food allergies
To be eligible, you must be an adult (18+ years of age) with multiple food allergies.
You are not eligible to participate if:
- You have only 1 food allergy (or food group, such as nuts)
- You have multiple food allergies and other health conditions that impact diet (i.e. diabetes, eating disorders)
The survey closes on December 8, 2019.
Food allergy survey for pediatricians and allergists
If you are a pediatrician or allergist who treats children and/or adults with food allergy, you are invited to participate in a study on the costs of medical visits for these patients. This study has been developed by food allergy researchers in Manitoba and British Columbia and approved by the University of Manitoba Health Research Ethics Board.
The researchers are interested in learning how pediatricians and allergists are compensated for their care of patients with food allergy. Unlike other specialties and services, the Canadian Institute for Health Information (CIHI) does not provide data on billing fees for food allergy-related visits.
Your participation in the study will help the researchers conduct economic analyses of the cost of food allergy to the healthcare system. It will also help patient organizations, like ours, advocate for government support to prioritize food allergy as an important public health concern.
How to participate:
To be eligible, you must:
- Be a pediatrician or allergist licensed to practice in at least one Canadian province or territory
- Treat children and/or adults with food allergy
The survey closes on December 8, 2019.
The survey takes 5-10 minutes to complete and responses will be anonymous. The survey must be completed in one sitting as it isn’t possible to save answers and return to them later.
Emerging Allergen Reporting Tool
If your child has had a reaction in the last 12 months to a food other than a priority allergen, participate in an important research survey. Your participation will help researchers, and advocacy groups like ours, better understand emerging allergens.